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Meet the Advocates

MyIgSource can connect you with other caregivers and patients living with PI. Find emotional support by talking one-on-one with these Patient Advocates, who have firsthand experience with managing the daily challenges of PI.

You can also connect with nurses who are experienced in helping patients manage their PI and treatment. These Nurse Advocates can help answer your questions about GAMMAGARD LIQUID administration and help you talk to your doctor about your treatment. Please note, Nurse Advocates cannot give medical advice.


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Meet Your Patient Advocates


Dayna

Dayna is the mother of four children with PI, and has been an active leader in the community for years. As a former teacher, she understands what it takes to educate and empower every member of her team. Dayna is dedicated to delivering the support and thoughtful guidance that allow MyIgSource Patient Advocates to bring that same commitment to patients, caregivers and their families.

Submit a question to an Advocate.

Kristin

Kristin is a mother of four grown children with PI. She has experienced both the pain of misdiagnosis of one of her children and the comfort that comes from speaking with other caregivers and patients. Kristin and her husband also have two goofy golden retrievers who keep them entertained.

Submit a question to an Advocate.

Julie

For Julie, a PI diagnosis didn't mean giving up an active lifestyle. In fact, shortly after being diagnosed, she participated in her first relay event to raise awareness for PI. Now that Julie’s stepson is grown, she and her husband are looking forward to traveling the country and maybe even finding a new place to call home.

Submit a question to an Advocate.

Karen

Karen was diagnosed with PI at the end of 2011, but she had been looking for an answer since 1992. As the wife of a police officer and working mother of three children in college and high school, Karen knows a thing or two about managing a chronic illness—while still dealing with everyday life. She understands that it is a difficult and sometimes overwhelming diagnosis, but has learned how to empower herself and is grateful to be in a position to help others learn to do the same.

Submit a question to an Advocate.

Sue

Sue struggled with chronic infections for several decades before finally being diagnosed with PI in her late 50s. As a Patient Advocate, Sue encourages patients and caregivers to seek out the best possible care and to advocate for themselves. She also uses her teaching background to help people understand primary immunodeficiency and to develop better communication with their families, friends, and healthcare providers.

Submit a question to an Advocate.

Scott

Scott is the father of two adult children and is diagnosed with PI. He and his wife love spending time with their grandchildren and enjoying the great outdoors. A proud member of the Patient Advocate team, Scott is thrilled to work alongside members of the community and to serve with passion.

Submit a question to an Advocate.

Laura

Laura and her wonderful husband are parents to two active young adults. She was diagnosed with CVID in 2017, ten years after her son received the same diagnosis. Laura believes education and empowerment are the keys to helping patients successfully navigate their PI journey. When she finds the time for herself, she goes to her happy place: at the beach snorkeling.

Submit a question to an Advocate.

Kris

Kris is a mother of three children with three different rare diseases. One of her daughters was diagnosed with CVID in 2012 after many years of searching for answers. Despite their health issues, her family has a very active life that includes lots of walks with the family’s bichonpoo.

Submit a question to an Advocate.

Renee

Renee is a former teacher and mother of one adult child. Since 2012 when she was initially diagnosed with CVID, she and her husband have both relied on MyIgSource’s educational resources and peer-to-peer support. Renee hopes to help other families learn more about PI by sharing her own experience with a PI diagnosis in adulthood. She also strives to provide support for others who are searching for answers while coping with the uncertainty of a new diagnosis.

Submit a question to an Advocate.

Austen

Having been diagnosed early in life, Austen recognizes the challenges of growing up and transitioning into adulthood with PI. He does not let PI stand in the way of his passion for golf and traveling. Newly married, Austen can often be found in the kitchen testing new recipes alongside his wife.

Submit a question to an Advocate.

Lori

Lori`s husband was diagnosed with CVID in 2008. Through this experience and as a mother to two children, she recognizes how PI can affect the entire family. Her husband is a business owner who has learned to manage his PI while successfully pursuing his passions. As a proud Patient Advocate, Lori is committed to providing support and encouragement to patients — and their families.

Submit a question to an Advocate.

Shawna

Shawna is a mother of three adult children and grandmother to one. At only 18-months old, her daughter was diagnosed with primary immunodeficiency. This quickly taught Shawna the importance of empowering her daughter to take ownership of her health as she grew into adulthood. Shawna enjoys traveling and baking sweet treats for her family.

Submit a question to an Advocate.

Xan

Xan is the mother of two adult children, but her daughter was diagnosed with PI early in life. She understands the impact PI can have on a child as well as the family, and she has a passion for helping families navigate this journey — especially as it pertains to managing education, from pre-school through college. Xan is an ardent Disney fan who just might live at Disney World if they would let her.

Submit a question to an Advocate.



Nurse Advocates


Kristen

RN
Kristen has been a nurse advocate for MyIgSource for 4 years, and has been a registered nurse for 17 years, with 8 of those years in an outpatient infusion center where she administered Ig treatment, among other therapies. She knows how important it is for patients and their families/caregivers to be educated about the patient's condition and treatment plan. Kristen enjoys sharing her knowledge with patients and other health care providers.

Submit a question to an Advocate.

Erin

RN
Erin has been a nurse advocate for MyIgSource for over 2 years, and has been a registered nurse for 11 years, with 6 of those in hematology and oncology, specializing as an educator, infusion nurse, and presenter. She is an expert in IG therapy and excels in infusion therapy skills. Erin enjoys providing training to health care providers and has a passion for patient education and empowerment.

Submit a question to an Advocate.

Liza

RN
Liza has over 10 years of experience and a wide clinical background in nursing. She has worked in home health care where she provided care including IG therapy, telephonic nurse support as well as performed the role of Care Manager, coordinating a team effort to provide quality patient care. Liza recently obtained her Bachelor’s in Nursing with a focus on patient education. Liza understands the importance of patient education and support and applies her passion and knowledge to her patient, caregiver, and health care provider interactions.

Submit a question to an Advocate.


  • MyIgSource is a patient support program for all PI patients and caregivers throughout your journey. Sign up to get access to experienced Patient and Nurse Advocates, get information about insurance and financial support, useful tools, and more.
    Learn More
  • Ask an Advocate Questions about PI or PI treatments? Our trained Patient and Nurse Advocates can help, and asking your question is easy with our Ask An Advocate feature.
    Start Getting Answers

Gammagard Liquid MyIgCoPayCard Program Terms and Conditions

This manufacturer's coupon program is not valid for prescriptions reimbursed, in whole or in part, by Medicaid, Medicare, Medigap, VA, DoD, TRICARE, or any other federal or state healthcare programs, including state pharmaceutical assistance programs, and where prohibited by the health insurance provider or by law

Shire's MyIgCoPayCard program provides a maximum total benefit of $5,000 for eligible out-of-pocket costs and expires 12 months from date of activation. Eligible costs include deductible, copayment, and co-insurance costs for eligible Shire IG (Immunoglobulin) products. Non-medication expenses, such as ancillary supplies or administration-related costs, are not eligible.

To be eligible, patients must: 1. be starting or receiving treatment with (and have current prescription for) an eligible Shire IG product with an ICD-10 for a diagnosis of Primary Immunodeficiency; and 2. have commercial insurance that covers medication costs for prescribed Shire IG product and allows for CoPay assistance; and 3. be two (2) years old or older.

Acceptance of this offer must be consistent with the terms of benefits provided by patient's health insurance provider.

Offer limited to one card per person and may not be combined with any other coupon, discount, prescription savings card, rebate, free trial, patient assistance, or other offer.

This program is only valid for residents of the United States.

Shire reserves the right to change or discontinue this program at any time without notice.

This is not health insurance.

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Add to patient instructions:

If your insurance situation changes, it is your responsibility to notify MyIgSource's CoPay assistance program.


© 2017 Shire. All rights reserved.

SHIRE and the Shire Logo are registered trademarks of Shire Pharmaceutical Holdings Ireland Limited or its affiliates. Gammagard Liquid is a trademark or registered trademark of Baxalta Incorporated, a wholly owned, indirect subsidiary of Shire plc.

S30515 04/17

Please expand for Indication and Important Safety Information.

IMPORTANT SAFETY INFORMATION

What is the most important information that I should know about GAMMAGARD LIQUID?

GAMMAGARD LIQUID can cause the following serious reactions: severe allergic reactions causing difficulty in breathing or skin rashes; decreased kidney function or kidney failure; blood clots in the heart, brain, lungs or elsewhere in the body; severe headache, drowsiness, fever, painful eye movements, or nausea and vomiting; dark colored urine, swelling, fatigue, or difficulty breathing.