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At the Doctor

When managing a chronic condition like primary immunodeficiency (PI), developing a good relationship with your healthcare team is important. Making sure you're having effective discussions helps you and it helps your doctor. Learn some tips on effective communication below.

Communicating With Your HCP

Although your healthcare provider has your best interests in mind, he or she cannot get the full picture of your health without an essential component: you. You are the only one who knows how you feel, and unless you tell your doctor what you are experiencing, he or she may not be able to help.

Don't automatically assume that anything you are experiencing is normal without first finding out from your doctor.

How to Communicate

Does your doctor prefer communicating over the phone? Through email? With in-person appointments? Plan with your physician on a communication strategy that works for both of you, for normal communications and for emergencies.

What to Talk About

Things to tell your doctor include:

  • Infections: What infections have you experienced and how did you treat them? Did the treatment work? Make sure to include specific medication names, dosages and frequencies.
  • Ig Infusion experience: Tell your doctor how your infusions are going. Are you experiencing any side effects? Are you happy with how your treatment is going?
  • Other issues: If you are experiencing any other health issues, even if they don't seem to be related, make sure to tell your doctor.

Improving your conversations with your doctor starts with you. It may be helpful to keep an ongoing list of questions to ask at your next appointment, and it is always a good idea to keep track of what happens with your health between appointments.

Tracking and Assessing Your Health

In order to get a full picture of your health, your doctor also needs to know everything that has been happening in between appointments. Even if an infection or complication has been resolved by the time of your appointment, you will still want to tell your doctor about it.

Get in the habit of tracking all the details about your health. Record your infusions, including dosage and frequency, and write down all symptoms and improvements. You will also want to write down specifics about any infections you may have experienced and treatments you took for them. Be specific—include medication names, dosages, and frequencies.

We offer resources to help you with tracking, including an Infusion Log and Wellness Calendar. These resources, and many others, are complimentary by joining MyIgSource.

Visit our Managing My Treatment section for even more information and resources about how to stay in control of your health.

  • MyIgSource is a patient support program for all PI patients and caregivers throughout your journey. Sign up to get access to experienced Patient and Nurse Advocates, get information about insurance and financial support, useful tools, and more.
    Learn More
  • Ask an Advocate Questions about PI or PI treatments? Our trained Patient and Nurse Advocates can help, and asking your question is easy with our Ask An Advocate feature.
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Gammagard Liquid MyIgCoPayCard Program Terms and Conditions

This manufacturer's coupon program is not valid for prescriptions reimbursed, in whole or in part, by Medicaid, Medicare, Medigap, VA, DoD, TRICARE, or any other federal or state healthcare programs, including state pharmaceutical assistance programs, and where prohibited by the health insurance provider or by law

Shire's MyIgCoPayCard program provides a maximum total benefit of $5,000 for eligible out-of-pocket costs and expires 12 months from date of activation. Eligible costs include deductible, copayment, and co-insurance costs for eligible Shire IG (Immunoglobulin) products. Non-medication expenses, such as ancillary supplies or administration-related costs, are not eligible.

To be eligible, patients must: 1. be starting or receiving treatment with (and have current prescription for) an eligible Shire IG product with an ICD-10 for a diagnosis of Primary Immunodeficiency; and 2. have commercial insurance that covers medication costs for prescribed Shire IG product and allows for CoPay assistance; and 3. be two (2) years old or older.

Acceptance of this offer must be consistent with the terms of benefits provided by patient's health insurance provider.

Offer limited to one card per person and may not be combined with any other coupon, discount, prescription savings card, rebate, free trial, patient assistance, or other offer.

This program is only valid for residents of the United States.

Shire reserves the right to change or discontinue this program at any time without notice.

This is not health insurance.


Add to patient instructions:

If your insurance situation changes, it is your responsibility to notify MyIgSource's CoPay assistance program.

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SHIRE and the Shire Logo are registered trademarks of Shire Pharmaceutical Holdings Ireland Limited or its affiliates. Gammagard Liquid is a trademark or registered trademark of Baxalta Incorporated, a wholly owned, indirect subsidiary of Shire plc.

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What is the most important information that I should know about GAMMAGARD LIQUID?

GAMMAGARD LIQUID can cause the following serious reactions: severe allergic reactions causing difficulty in breathing or skin rashes; decreased kidney function or kidney failure; blood clots in the heart, brain, lungs or elsewhere in the body; severe headache, drowsiness, fever, painful eye movements, or nausea and vomiting; dark colored urine, swelling, fatigue, or difficulty breathing.