Home > Managing Your Treatment > Travel

Traveling With PI

Having primary immunodeficiency (PI) does not necessarily have to prevent you from traveling, but it does mean taking some extra precautions. Remember to include your healthcare team as you plan any trips.


Before You Leave

In addition to all the normal parts of planning for a trip, you’ll want to take time to prepare for everything involving your PI. Some areas to take into consideration may include the following.

Destination

If you are planning a vacation, particularly if you are hoping to travel abroad, it is important to consider the safety of your destination. For your reference, the Centers for Disease Control and Prevention (CDC) maintains up-to-date information for travelers about health concerns in other countries. Talk to your doctor about whether the destination you have in mind is a good choice for you, and what extra precautions you may need to take in visiting there.

Infusion Planning

Consider when your or your family’s infusions are scheduled, and try to plan accordingly. You may want to schedule infusions for just before leaving, if possible, or for as soon as you return.

Packing

Make sure to bring all your necessary medical supplies with you. Pack them in your carry-on bag when flying or as the last item packed in the car so they are easy to locate. This can help ensure they are readily available. For rules surrounding Transportation Security Administration (TSA) screening of medical supplies, see our Flying With Medical Supplies section below.

You may also want to pack additional information about your or your family’s health, including healthcare records, names and dosages of medications, and extra copies of insurance cards.

Also, keep in mind that you can bring along our complimentary SubQ Travel Kit. Learn more about what it includes and how to order it here.

Immunologists in Your Destination

If you have to be away for an extended period of time, consider finding an immunologist in your destination who may be able to treat you if needed. It may also be worth locating an immunologist in case of emergency.

While You’re Away

Making Healthful Choices

In addition to normal illness-prevention techniques, such as frequent hand-washing and not sharing drinks with people who may be sick, you may want to take some extra precautions when traveling. Some tips may include:

  • Bringing extra layers of clothing when you will be outside for a prolonged period of time.
  • Carrying snacks when you are away in case meal time gets delayed.
  • Packing antibacterial hand wipes in case you don’t have good access to a place to wash your hands.
  • Not drinking well water or water from a stream, particularly when camping, because it may have higher concentrations of bacteria or parasites.

For more tips on preventing illnesses, see the Avoiding Infections section on our ImmuneDisease.com website.

Flying With Medical Supplies

Don’t let concerns about airport security prevent you from traveling. TSA agents are accustomed to screening travelers with medications. Your medical supplies are also protected from many of the airport security rules you are used to. For example, medications may be carried onto the plane in quantities greater than the 3.4-fluid-ounce limit required for other liquids.1

For more details on these rules, visit the TSA website.

Include Your Healthcare Team in Travel Plans

The questions below can help you make sure you are having an effective conversation with your healthcare team prior to leaving for a trip. Consider using them as a discussion guide.

  • Are there any places you think are not prudent for me to visit?
  • Are there any precautions I need to take before visiting the destination I have in mind?
  • Do I need to make any adjustments to my infusion schedule? Should I do an infusion before I leave or immediately after returning?
  • If there is an emergency while I’m traveling, whom should I have the physicians treating me contact and what is the best way to do this?
  • Is there an immunologist you trust in the area I’ll be traveling?

Reference: 1. Transportation Security Administration. Medically Necessary Liquids. Washington, DC: US Department of Homeland Security. Available at:
http://www.tsa.gov/traveler-information/medically-necessary-liquids. Accessed: October 16, 2013.

    

  • Sign up to get access to experienced Patient and Nurse Advocates, insurance and financial support, useful tools, and more.
    Enroll Now
  • 
  • Meet Kristin,
    Patient Advocate
    A mother of four children who all have PI, Kristin is here to talk to you.
    Meet our Advocates
  • 
  • You’re Not Alone Book Twenty-two real patients and caregivers share their thoughts on the PI journey. When you enroll in MyIgSource, we'll send you a complimentary copy.
    Enroll Now

You are now leaving GAMMAGARD.com

Shire is not responsible for the privacy policy, the content or the accuracy of any web site accessed through a link on the GAMMAGARD.com site. A link to other web sites does not constitute an endorsement of Shire of the linked site, its products or services.

The browser window or tab for GAMMAGARD.com will remain open underneath the new browser window or tab. To return to GAMMAGARD.com at any time, close this tab or window.

Return to
GAMMAGARD.com
Continue

Terms and Conditions

Patient instructions

  1. By using this coupon, you are certifying that:
  2. 1) You meet the eligibility criteria and have read and agree to the terms and conditions of this manufacturer coupon program;
  3. 2) You will not, at any time, submit any costs for the product dispensed pursuant to this coupon to any government healthcare program for reimbursement;
  4. 3) You are permitting your personal information, including name, address, phone number, email address, and information related to health insurance and treatment, to be shared with Shire and companies working with Shire for the purpose of administering this program; and
  5. 4) You will notify your health insurance provider or other third-party payer of the use of this coupon if required to do so.
  6. If your insurance situation changes it is your responsibility to notify Shire's MyIgCoPayCard program.
  7. For questions about this program, patients and caregivers can call MyIgSource at (855) 250-5111.

Pharmacy instructions

  1. By submitting a claim for reimbursement pursuant to this manufacturer coupon program, the Pharmacy represents and warrants that:
  2. 1) It has dispensed GAMMAGARD LIQUID treatment to an eligible patient and in accordance with the terms and conditions of this program and the accompanying prescription;
  3. 2) Its participation in this program is consistent with all applicable laws and any obligations, including its contract with the applicable payer;
  4. 3) If the patient's insurance situation changes, it will notify Shire immediately by contacting the MyIgCoPayCard program;
  5. 4) It will report coupon assistance received to payers if so required; and
  6. 5) The entire benefit amount received will go to eligible expenses and it will not retain any portion of the benefit as payment to it for administration or ineligible expenses.
  7. For questions regarding processing, claim transmission, patient eligibility, or other issues, pharmacists can call the MyIgCoPayCard program directly at (855) 217-1615.