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Traveling With PI

Having primary immunodeficiency (PI) does not necessarily have to prevent you from traveling, but it does mean taking some extra precautions. Remember to include your healthcare team as you plan any trips.


Before You Leave

In addition to all the normal parts of planning for a trip, you'll want to take time to prepare for everything involving your PI. Some areas to take into consideration may include the following.

Destination

If you are planning a vacation, particularly if you are hoping to travel abroad, it is important to consider the health risks of your destination. For your reference, the Centers for Disease Control and Prevention (CDC) maintains up-to-date information for travelers about health concerns in other countries. Talk to your doctor about whether the destination you have in mind is a good choice for you, and what extra precautions you may need to take in visiting there.

Infusion Planning

Consider when your or the one(s) you care for infusions are scheduled, and try to plan accordingly. You may want to schedule infusions for just before leaving, if possible, or for as soon as you return.

Packing

Make sure to bring all your necessary medical supplies with you. Pack them in your carry-on bag when flying or as the last item packed in the car so they are easy to locate. This can help ensure they are readily available. For rules surrounding Transportation Security Administration (TSA) screening of medical supplies, see our Flying With Medical Supplies section below.

You may also want to pack additional information about your or your family's health, including healthcare records, names and dosages of medications, and extra copies of insurance cards. Make sure you read the storage requirements on your Ig treatment before packing it.

Immunologists in Your Destination

If you have to be away for an extended period of time, consider finding an immunologist in your destination who may be able to treat you if needed. It may also be worth locating an immunologist in case of emergency.

While You're Away

Making Healthful Choices

In addition to normal illness-prevention techniques, such as frequent hand-washing and not sharing drinks with people who may be sick, you may want to take some extra precautions when traveling. Some tips may include:

  • Bringing extra layers of clothing when you will be outside for a prolonged period of time.
  • Carrying snacks when you are away in case meal time gets delayed.
  • Packing antibacterial hand wipes in case you don't have good access to a place to wash your hands.
  • Not drinking well water or water from a stream, particularly when camping, because it may have higher concentrations of bacteria or parasites.

For more tips on preventing illnesses, see the Avoiding Infections section on our ImmuneDisease.com website.

Flying With Medical Supplies

Don't let concerns about airport security prevent you from traveling. TSA agents are accustomed to screening travelers with medications. Your medical supplies are also protected from many of the airport security rules you are used to. For example, medications may be carried onto the plane in quantities greater than the 3.4-fluid-ounce limit required for other liquids.1

For more details on these rules, visit the TSA website.

Include Your Healthcare Team in Travel Plans

The questions below can help you make sure you are having an effective conversation with your healthcare team prior to leaving for a trip. Consider using them as a discussion guide.

  • Are there any places you think are not prudent for me to visit?
  • Are there any precautions I need to take before visiting the destination I have in mind?
  • Do I need to make any adjustments to my infusion schedule? Should I do an infusion before I leave or immediately after returning?
  • If there is an emergency while I'm traveling, whom should I have the physicians treating me contact and what is the best way to do this?
  • Is there an immunologist you trust in the area I'll be traveling?

Reference: 1. Transportation Security Administration. Disabilities and medical conditions. https://www.tsa.gov/travel/special-procedures. Accessed April 24, 2017.

    

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This manufacturer's coupon program is not valid for prescriptions reimbursed, in whole or in part, by Medicaid, Medicare, Medigap, VA, DoD, TRICARE, or any other federal or state healthcare programs, including state pharmaceutical assistance programs, and where prohibited by the health insurance provider or by law

Shire's MyIgCoPayCard program provides a maximum total benefit of $5,000 for eligible out-of-pocket costs and expires 12 months from date of activation. Eligible costs include deductible, copayment, and co-insurance costs for eligible Shire IG (Immunoglobulin) products. Non-medication expenses, such as ancillary supplies or administration-related costs, are not eligible.

To be eligible, patients must: 1. be starting or receiving treatment with (and have current prescription for) an eligible Shire IG product with an ICD-10 for a diagnosis of Primary Immunodeficiency; and 2. have commercial insurance that covers medication costs for prescribed Shire IG product and allows for CoPay assistance; and 3. be two (2) years old or older.

Acceptance of this offer must be consistent with the terms of benefits provided by patient's health insurance provider.

Offer limited to one card per person and may not be combined with any other coupon, discount, prescription savings card, rebate, free trial, patient assistance, or other offer.

This program is only valid for residents of the United States.

Shire reserves the right to change or discontinue this program at any time without notice.

This is not health insurance.

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Selected Important Safety Information for GAMMAGARD LIQUID
  • GAMMAGARD LIQUID can cause decreased kidney function or kidney failure, blood clots in the heart, brain, lungs or elsewhere in the body. Call your healthcare professional or go to your emergency department right away if you have: Reduced urination, sudden weight gain, or swelling in your legs. These could be signs of a kidney problem. Pain, swelling, warmth, redness, or a lump in your legs or arms. These could be signs of a blood clot.
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